TY - JOUR
T1 - Healthcare Barriers and Inequities
T2 - The Lived Experiences of Women With Intellectual Disabilities in Chile
AU - Álvarez-Aguado, Izaskun
AU - Córdova, Vanessa Vega
AU - Roselló-Peñaloza, Miguel
AU - Farhang, Maryam
AU - Rivera, Felipe Muñoz La
AU - González-Carrasco, Félix
AU - González, Herbert Spencer
N1 - Publisher Copyright:
© 2025 John Wiley & Sons Ltd.
PY - 2025
Y1 - 2025
N2 - Background: Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women with mild to moderate intellectual disabilities in Chile and their interactions with healthcare systems. Method: A qualitative design was used, collecting data through semi-structured interviews to examine communication challenges, discrimination and unmet support needs. Results: Participants reported difficulties understanding medical terminology, limited time for questions and a lack of visual aids. They also experienced discrimination, including infantilization and negative provider attitudes, which undermined their autonomy. The absence of tailored support, such as simplified materials and personalized guidance, further hindered their engagement with healthcare services. Conclusions: Findings highlighted systemic inequities influenced by gender and disability biases. Participants stressed the need for inclusive provider training and accessible communication tools. Recommendations included visual aids, specialized healthcare navigation support, and inclusive health education programs to improve equitable healthcare access.
AB - Background: Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women with mild to moderate intellectual disabilities in Chile and their interactions with healthcare systems. Method: A qualitative design was used, collecting data through semi-structured interviews to examine communication challenges, discrimination and unmet support needs. Results: Participants reported difficulties understanding medical terminology, limited time for questions and a lack of visual aids. They also experienced discrimination, including infantilization and negative provider attitudes, which undermined their autonomy. The absence of tailored support, such as simplified materials and personalized guidance, further hindered their engagement with healthcare services. Conclusions: Findings highlighted systemic inequities influenced by gender and disability biases. Participants stressed the need for inclusive provider training and accessible communication tools. Recommendations included visual aids, specialized healthcare navigation support, and inclusive health education programs to improve equitable healthcare access.
KW - healthcare access
KW - healthcare equity
KW - inclusive health practices
KW - intellectual disabilities
KW - women's health
UR - http://www.scopus.com/inward/record.url?scp=105003265533&partnerID=8YFLogxK
U2 - 10.1111/bld.12653
DO - 10.1111/bld.12653
M3 - Article
AN - SCOPUS:105003265533
SN - 1354-4187
JO - British Journal of Learning Disabilities
JF - British Journal of Learning Disabilities
ER -